But opting out of some of these cookies may have an effect on your browsing experience. . What Do Developers Look for When Looking for an OutsourcingPartner? Date November 6 - 8, 2018. We look forward to welcoming you at the congress! On November 3 rd at 15:35 CET, our Vice President of Patient Engagement Valeria (Vale) Nicoli-Carr will be presenting ‘ Key Challenges and Proposed Solutions for Successful Orphan Drug Trials ’. What Do Insurance Companies Think About Orphan Drugs? Precision will be exhibiting at World Orphan Drug Congress virtual. There are more than 7,000 known rare diseases stemming from a multitude of factors; 80% are genetic in origin while the other 20% have environmental, immunological or other origins. Across four days, join hundreds of attendees logging in from all over the globe to hear the latest across the orphan drug industry. World Orphan Drug Congress Europe. With their virtual event platform, they will make sure you’ll be able to network, find new solutions and build your community. Precision will be exhibiting at World Orphan Drug Congress virtual. David is the Vice President of International Medical Affairs at Vertex and has been in this role since March 2016. These include developing innovative access arrangements in liaison with industry, clinicians, patients and the NHS. Cromos Pharma is delighted to be taking part in this year's World Orphan Drugs Congress (Europe) Nov 2-5, 2020. The Oxford PharmaGenesis Patient Engagement Team was lucky enough to attend the World Orphan Drug Congress Europe earlier in November. How Can the Developer and the Patient Assist in the Evolution andDevelopment of Orphan Drugs to make it accessible to patient inshorter period of time? At Cromos Pharma we have built up extensive expertise in orphan drug research and developed solutions to overcome some of key challenges in this area. Several PARADIGM project partners attended the Congress, where they presented the project to the rare diseases community. This category only includes cookies that ensures basic functionalities and security features of the website. November 11, 2019 - November 14, 2019, All Day. Out of more than 7,000 rare diseases identified, only a fraction of them have approve treatment available. The event will take place at Hotel Sofia, Barcelona between November 13-14, 2019. The European Medicines Agency (EMA) plays a central role in facilitating the development and authorisation of medicines for rare diseases, which are termed 'orphan medicines' in the medical world. Of much interest to our team were patient centricity, initiatives working with patient groups/advocates and, specifically, discussions around access and […] He is currently serving on the Board of the MedTech & Pharma Platform headquartered in Switzerland. It’s the 12th in the series of our Flagship tri-annual Orphan Drugs and Rare Diseases event, this congress will provide you with a comprehensive overview of the critical issues shaping the future of Orphan Drugs. Development and Manufacturing Services; Analytical Characterization & Quality Control; Viral Testing & Clearance ; Bioanalytical Laboratory Services Home Our Company Events World Orphan Drug Congress EU 2020 . He received his Ph.D. in Pharmacology and Molecular Sciences at the Johns Hopkins University School of Medicine. Jocelyn is Conference Director at Paradigm Global Events (PGE). Read about the European … Orphan Drugs & Rare Diseases. He has over 20 years of experience in biopharmaceutical drug development, and a life-long interest and research experience in infectious diseases, focusing on the development of innovative human monoclonal antibodies and vaccines designed to address life threatening infections. WODC 2020. Join us in November and make sure you are at the forefront of the orphan drug industry. We will gather together high calibre expert speakers to participate and share their knowledge and expertise through Panel discussions, keynote presentations and 4 major agenda streams addressing all aspect of the industry. Optimal Selection of Data and Technology for Use Throughout the Orphan Medicinal Product Life Cycle Wednesday, Nov 13 | 11:30am-12:15pm or 12:20pm-1:05pm (2 rotations) Erwin De Cock, Principal, Late Phase, Syneos Health . The Orphan Drugs & Rare Diseases Global Congress 2021 Europe is dedicated to the critical issues shaping the future of Orphan Drugs.. 13-15 November 2017, Barcelona, Spain. The conference will provide a unique platform for the convergence of stakeholders in the orphan drugs industry to discuss and network with top tier government, pharmaceuticals, biotechs, non-profit organisations, orphan drugs developers, research organizations as well as patient groups and advocates. Gain practical strategies and best practices on challenges, innovations, technologies and concepts surrounding orphan drugs and rare diseases. The World Orphan Drug Congress USA is a digital media and events platform for the rare disease community. This year was virtual. She has over 15+ years experience in organizing pharma-industry conferences and has been at the helm of every PGE conference since 2013. Currently, the regulatory climate is favourable with both FDA and European Medicines Agency, as they offer incentives, tax credits, user waivers and marketing exclusivity. Thomas Kühler is a PhD chemist by training with a post-doctoral degree obtained with late Nobel Prize Laureate Donald J. Cram. From a patient advocacy organization perspective, was a very informative meeting. From 13th – 15th November you will have the opportunity to participate in a vibrant gathering with more than 90 high-level speakers and 450 participants – bringing together pharma, biotech, government, payers, and regulators! The Conference offers strategic keynote plenaries, themed tracks and dedicated networking sessions, you have the chance to really tailor the event to the needs of your day-to-day role. Out of these cookies, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. The World Orphan Drug Congress and Cell & Gene Therapy is a meeting place for the rare disease community. The Orphan Drugs & Rare Diseases Global Congress 2021 Europe covers topics such as: Finding innovative and alternative ways in funding the development of Orphan Drugs Barcelona, Spain, Europe . If you wish to set up a meeting with us during the event please contact ERGOMED’s senior business development manager, Ines Medved ( ines.medved@ergomedplc.com). Paradigm Global Events is again proud to present our Orphan Drugs and Rare Diseases 2020 Europe. Sheela Upadhyaya is currently the Associate Director of the Highly Specialised Technology program at NICE and is responsible for running the program to evaluate medicines and technologies for rare and ultra-rare conditions for commissioning in the NHS. The 8th annual World Orphan Drug Congress is the marketplace for orphan drug professionals looking at the complete value chain of orphan drug development, from clinical development and R&D to corporate development and market access. Outside Industry David has been active in the UK Clinical Research community for some time. Leading specialist market access consultancy Partners4Access has announced their gold sponsorship of the biotech industry conference World Orphan Drug Congress (WODC) Europe. The conference was broad-ranging in terms of sessions and speakers; however, there were some sessions of particular note. Join TRINITY at the World Orphan Drug Conference, Europe’s meeting place for the rare disease community. It is a congress for strategy, advocacy, and partnering for the orphan drug industry. Featured Presentations . World Orphan Drug Congress. Presidents, Heads/Chiefs, Directors, VPs and Managers in the are of. Learned a lot from presentations and networking that will inform how we can add value to the advocacy-patient-drug developer dialogue. The Oxford PharmaGenesis Patient Engagement Team was lucky enough to attend the World Orphan Drug Congress Europe earlier in November. You can also schedule a meeting with us here. This Joint Undertaking receives support from the European Union’s Horizon 2020 research and innovation programme and EFPIA. The agenda covers the strategic and commercial aspects of bringing new treatments to patients who suffer from rare diseases. These cookies will be stored in your browser only with your consent. Expand Map. Expand Map. Choose from.. Paradigm Global Events (PGE) is an Independent Business Information provider, specializing in Business Intelligent Reports and analysis in Solution Based Networking Events to decision makers. As a result, the number of therapies approved for rare diseases for the past two decades has grown exponentially. Jocelyn is based in London, UK. November 11, 2019 - November 14, 2019, All Day. The World Orphan Drug Congress took place in Barcelona, Spain, late last year. Paradigm Global Events is again proud to present our Orphan Drugs and Rare Diseases 2019 Europe. #WODEurope. Key authorities facilitating development and approval of diagnosticproducts/services, Coming Together in Developing Orphan Drugs and CrossingBorders, Trends and evolution of Advance Therapy Medicinal Products. This website uses cookies to improve your experience while you navigate through the website. Vice President, International Medical Affairs, Vertex, Head Regulatory Science & Policy, EU/AMEE, Sanofi, Chief Executive Officer, Aridis Pharmaceutical, Associate Director - Highly Specialised Technologies, NICE. Sheela has a passion for partnership working and believes that collaboration across the sector is the key to delivering high quality outcomes for all. ERGOMED representatives will attend World Orphan Drug Congress from 15 th November till the 17 th November 2016 in Brussels, Belgium.. It is mandatory to procure user consent prior to running these cookies on your website. Leading specialist market access consultancy Partners4Access has announced their gold sponsorship of the biotech industry conference World Orphan Drug Congress (WODC) Europe. Read more > During that time, she successfully decommissioned failing services and seamlessly transferred the care of patients to better quality services. World Orphan Drug Congress EU 2020. The World Orphan Drug Congress and Cell & Gene Therapy is a meeting place for the rare disease community. The World Orphan Drug Congress is an award-winning event with an exhibition that has grown to become the largest and most established orphan drugs & rare diseases meeting of its kind across the globe. World Orphan Drug Congress USA focusses on the most pressing challenges and opportunities to bring rare disease therapies to patients faster. World Orphan Drug Congress, Europe. David qualified in Medicine, Physiology and Clinical Pharmacology from St. Mary’s Hospital (Imperial College of Science, Technology and Medicine) in 1992. In this role he managed and led a group of Medical Directors across Europe and Asia – Pacific. The voice of rare disease patients in Europe The international voice of people living with rare diseases Bringing together patients, families and experts to share experiences in a moderated multi-language forum. Bringing together a global gathering of 1,200 leaders in orphan drugs from 50 countries, World Orphan Drug Congress USA will feature over 135 presentations covering all aspects of orphan drug development and rare disease Read more > Representatives from Oxford PharmaGenesis were in attendance over the 3-day meeting. Schedule a Meeting. The World Orphan Drug Congress is an award-winning event with an exhibition that has grown to become the largest and most established orphan drugs & rare diseases meeting of its kind across the globe. It’s the 12th in the series of our Flagship tri-annual Orphan Drugs and Rare Diseases event, this congress will provide you with a comprehensive overview of the critical issues shaping the future of Orphan Drugs. Orphan Drugs and Rare Diseases Global Congress 2020 Europe. Dr. Truong is the principal architect of the Aridis technologies, which includes a range of anti-infective products, APEXTM human mAb discovery and production platform technology, and pharmaceutical processing technologies. Patients perspective: what really matters to rare disease patientsand caregivers? It is always a positive to raise awareness and make connections with other rare disease stake holders globally. World Orphan Drug Congress Europe 2020 We are also delighted to be participating in this year’s virtual World Orphan Drug Congress Europe . It’s the 12th in the series of our Flagship tri-annual Orphan Drugs and Rare Diseases event, this congress will provide you with a comprehensive overview of the critical issues shaping the future of Orphan Drugs. With immense pride and pleasure, we cordially welcome participants from all over the globe to our “4 th World Congress on Rare Diseases and Orphan Drugs” which is scheduled on August 19-20, 2020 in Frankfurt, Germany. Now in its 11th annual edition, the World Orphan Drug Congress Europe, together with the co-located Cell & Gene Therapy Congress, will continue to bring experts from the whole value chain under a virtual platform, where you get to meet decision-makers in the areas that are most applicable for your business offering. Opportunity to network with Peers, potential Partners and Investors. Government authorities, payers, industry and patient advocacy groups are all joining us. The World Orphan Drug Congress USA 2021 covers topics such as:. Prior to leaving Pfizer, David was Vice President for Medical Affairs in Pfizer’s Primary Care Business Unit covering Europe, Canada, Australia and New Zealand where he established a Regional Medical Affairs group covering Pfizer’s primary care portfolio of medicines. At Pfizer, David worked in Clinical Development and in Medical Affairs in the UK and also spent time working at a Global level in New York for 4 years. View map Register. Despite the current situation around the world, we hope you’ll join us in the virtual platform created for this meeting. This week, Rick – Findacure’s CEO – and I attended World Orphan Drug Congress (WODC) in Barcelona, Spain. Paradigm Global Events is again proud to present our Orphan Drugs and Rare Diseases 2020 Europe. In 2011 he then moved to work at Celgene where he was Head of Drug Safety and Risk Management for EMEA / APAC for Celgene Ltd. He rejoined Pfizer UK in April 2007 as UK Medical Director. Location: Hotel Sofia. Now in its 10th year, WODC has become one of the largest and well-established events on rare diseases and orphan drugs within Europe, catering for patient advocacy groups, regulators, and industry from across the continent. Use of Novel AI/ML Tools to Support Patient Identification; Perspectives From the Syneos Health Rare Disease Consortium. World Orphan Drug Congress, Europe. The World Orphan Drug Congress is an award-winning event with an exhibition that has grown to become the largest and most established orphan drugs & … Meet us at the World Orphan Drug Congress Europe 2020, Despite the current situation around the world, w. This website uses cookies to improve your experience. We are enabling pharma, biotechs, governments, payers, patient advocates and more to discuss new ideas and developments, with exclusive content … Strategies to improve Access and Affordability. Sponsors of designated orphan medicines can benefit from a number of incentives in the EU. The World Orphan Drug Congress is back for its 7th annual event in November with a brand new agenda. Sheela has co-authored several papers that discuss HTA methods for assessing value of orphan medicines and presented at many conference issue panels on the subject.Prior to joining NICE, she commissioned rare and ultra-orphan disease services in the NHS delivering improvements through collaborating with industry, clinicians and patient groups. The Orphan Drugs & Rare Diseases Global Congress 2021 Europe covers topics such as: Finding innovative and alternative ways in funding the development of Orphan Drugs The 7th annual World Orphan Drug Congress is the marketplace for orphan drug … In mid-November Barcelona played host to the World Orphan Drug Congress 2019, Europe’s largest commercially focused conference for the rare disease community. This is our 4th year attending. These cookies do not store any personal information. Current Orphan Drugs landscape and major drivers in global raredisease market, Key developmental strategies carried out and Influencing factorsthat may affect market share to stand out in this industry, Current FDA thinking regarding common issues encountered in raredisease drug development, Finding innovative and alternative ways in funding thedevelopment of Orphan Drugs. About: The World Orphan Drug Congress Europe 2020 is an award-winning event with an exhibition that has grown to become the largest and most established orphan drugs & rare diseases meeting of its kind across the globe. Event. It’s the 9th in the series of our Flagship tri-annual Orphan Drugs and Rare Diseases event, this congress will provide you with a comprehensive overview of the critical issues shaping the future of Orphan Drugs. Of much interest to our team were patient centricity, initiatives working with patient groups/advocates and, specifically, discussions around … After leaving Pfizer David held the role of Head of International Medical Affairs for Gilead Sciences. European Huntington Association Promotes Awareness, Potential Gene Therapies https://huntingtonsdiseasenews.com/…/european-huntington-a…/. The World Orphan Drug Congress USA 2021 is dedicated to the opportunities and challenges for commercialization and market potential for drugs to treat rare diseases.. The event will take place at Hotel Sofia, Barcelona between November 13-14, 2019. He also was a member and chair of the Board of The Organisation for Professionals in Regulatory Affairs in the UK. Established as one of the largest and most established European orphan drug event, the event will propose an exciting speakers line-up and agenda covering the whole orphan drug landscape.The 12th annual event will address the strategic and commercial aspects of bringing new … Global trends in orphan drug development; Biotech commercial strategies; Big Pharma strategies The Orphan Drugs & Rare Diseases Global Congress 2021 Europe is dedicated to the critical issues shaping the future of Orphan Drugs.. The virtual conference provided invaluable insights into hot topics and current issues for rare diseases. Global trends in orphan drug development; Biotech commercial strategies; Big Pharma strategies We also use third-party cookies that help us analyze and understand how you use this website. The complex … In recognition of his contributions to the field of Medicinal Chemistry and longstanding experience in drug discovery he was appointed Associate Professor in Medicinal Chemistry at Uppsala University in Sweden.Thomas has garnered his work experience from Hässle AB in Sweden (now AstraZeneca), the Medical Products Agency (the Swedish drug regulator), Novo Nordisk A/S in Denmark, and most recently Sanofi in France.Thomas has served on the Board of the Drug Information Association in the US. Scientific Director, Research, Association for Frontotemporal Degeneration. The 10th World Orphan Drug Congress is taking place 12th–14th November, 2019 in Barcelona, Spain.. Government authorities, payers, industry and patient advocacy groups are all joining us. 9:00AM - 6:00PM (GMT+02:00) E. Europe Standard Time. I felt I learned a lot and was glad to be able to attend. The World Health Organization (WHO) defines a disease as rare when it affects 1.3 in 2000 people. The PSR Orphan Experts and Ergomed team is looking forward to taking part in the four-day event of the World Orphan Drug Congress USA 2020, taking place in the virtual realm this year.. Just like our patients, we recognize that every rare disease clinical trial is different. It is a congress for strategy, advocacy, and partnering for the orphan drug industry. The Conference offers strategic keynote plenaries, themed tracks and dedicated networking sessions, attendees have the chance to really tailor the event to the needs of their day-to-day role. Our wonderful readers now have the chance to win a FULL ACCESS ticket for the annual World Orphan Drug Congress, in Barcelona, Spain! 20 Oct,2020 - 21 Oct,2020 London, UK Any cookies that may not be particularly necessary for the website to function and is used specifically to collect user personal data via analytics, ads, other embedded contents are termed as non-necessary cookies. About: The World Orphan Drug Congress Europe 2020 is an award-winning event with an exhibition that has grown to become the largest and most established orphan drugs & rare diseases meeting of its kind across the globe. The World Orphan Drug Congress USA 2021 is dedicated to the opportunities and challenges for commercialization and market potential for drugs to treat rare diseases.. He retained this interest in Pharmaceutical Medicine during his postgraduate training in Cardiology and General Medicine and joined Pfizer Global Research and Development in Sandwich in 1998. I was very impressed with the format, the content was interesting and well done. The virtual conference provided invaluable insights into hot topics and current issues for rare diseases. World Orphan Drug Congress is Europe's meeting place for the rare disease community. The World Orphan Drug Congress is coming to you, wherever you are. Being Europe’s largest Orphan Drug Congress, this event will provide a platform for you to showcase your thought leadership and expertise pharma, biotechs, payers, regulators and patient advocates. Rare disease predominantly affect children and due to lack of diagnosis and treatment, sadly 3 out of 10 children born with rare disease does not get to live till 5. Join Cromos Pharma at World Orphan Drug Congress-Europe 2020. Calendar Location Hotel Crowne Plaza. We are putting together an agenda that address the driving macroeconomic factors, policies, and issues that will steer the development of orphan drugs globally including access, commercialisation, collaborations, policies, reimbursement, pricing and more. Paradigm Global Events is again proud to present our Orphan Drugs and Rare Diseases 2020 Europe. “Orphan drugs” are intended to treat diseases so rare that sponsors are reluctant to develop them under usual marketing conditions. Welcome Message. In addition David acted as the QPPV for Celgene’s Pharmacovigilance System in Europe. Beyond Clinical Research, David has served on the Innovation sub- committee of the ABPI (Initiating the ABPI Real – World data project), represents Industry on the NICE Appeal Panel was a member of the 2009 RCP working party looking at the relationship between Industry, Academic Medicine and the NHS. The 10th World Orphan Drug Congress is taking place 12th–14th November, 2019 in Barcelona, Spain.. World Orphan Drug Congress is Europe’s meeting place for the rare disease community. He has represented Industry on the 2009 Academy of Medical Sciences Rawlin’s review looking into UK Clinical Research competitiveness and Governance. His product development experience includes FluMist™, Synagis™ mAb, and a number of other monoclonal antibody-based therapeutics. The Agency is responsible for reviewing applications from sponsors for orphan designation. CDH International once again attended the World Orphan Drug Congress Europe. Schedule a Meeting. Dr. Truong is a founder of Aridis and elected to the CEO position in 2014 after having served as the company’s Chief Scientific Officer for the past 9 years. The World Orphan Drug Congress USA 2021 covers topics such as:. Now in its 11th annual edition, the World Orphan Drug Congress Europe, together with the co-located Cell & Gene Therapy Congress, will continue to bring experts from the whole value chain under one roof, where you get to meet decision makers in the areas that are most applicable for your business offering. Join TRINITY at the World Orphan Drug Conference, Europe’s meeting place for the rare disease community. We'll assume you're ok with this, but you can opt-out if you wish. It is a congress for strategy, advocacy, and partnering for the orphan drug industry. Europe's most exciting orphan drug event. Last week, we attended one of the larger rare disease conferences in the calendar, the World Orphan Drug Congress Europe 2018, with the aim of telling the European rare disease community about some of the rare disease work in the UK, as well as learning more about what is happening in the rare world today. You also have the option to opt-out of these cookies. World Orphan Drug Congress EU . The agenda covers the strategic and commercial aspects of bringing new treatments to patients who suffer from rare diseases. About: The World Orphan Drug Congress Europe 2020 is an award-winning event with an exhibition that has grown to become the largest and most established orphan drugs & rare diseases meeting of its kind across the globe. 27 October 2020. Location: Hotel Sofia. About 30 million people living in the European Union (EU) suffer from a rare disease. 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